Non-Prescription Supply Program

ACT1 is one of the few organizations in the U.S. that provide a non-prescription supply exchange program for diabetics in need.

To find out more information and see how you can help ACT1's effort in serving the community click here!

Secure Supplies: Test Strips Save Lives – Tell Roche Pharmaceuticals To Expand Their Patient Assistance Programs!

Join our campaign and sign the petition that tells Roche Pharmaceuticals that test strips save lives!

DiabetesMine Patient Voices Contest 2012!

Submit your videos to the DiabetesMine Patient Voices Contest. Voice your opinion on current diabetes technology and tell the world what new advances you would like to see! Click Here for More Information!

Upcoming Events

Christmas 28 years ago

It was Christmas eve.  I was 5 years old.  My parents, sister and I were waiting for more of our family to come over as they always did to celebrate Christmas.  I don’t remember if it was cold.  I don’t remember if it was raining or snowing.  I actually don’t remember much at all about that night.  I was extremely thirsty and kept asking my parents for something to drink.  I was urinating way too much.  My parents knew what those signs probably meant so they tested my glucose level via my father’s urine strips which were more like tape back then.  It came out pretty dark.  I can only imagine their disbelief in what was happening to one of their 5 year old daughters.  They called my father’s endocrinologist and he obviously advised them to bring me to the hospital, which they did.  They left my poor twin sister with family members at home, packed up some things and took my little self to the emergency room.  And that was the day I was diagnosed with type 1 diabetes.  It ruined my Christmas that year and in a way, has put a damper on it every year since then.  It’s a date that I can never forget but in a way am glad I don’t remember a lot.  I don’t really remember being told my blood glucose level was about 300.  I don’t really remember having to spend Christmas in the hospital and not playing with new toys with my sister.  I don’t really remember having to learn how to give injections and being told I couldn’t eat certain things anymore.  I don’t really remember how my parents reacted to the fact that their daughter now was a type 1 diabetic.  I don’t remember missing school for an extended period of time due to my hospitalization.       

 Now that it’s been 28 years, I cannot believe myself how much things have changed.  I started out with testing glucose levels by peeing in a test tube and dropping a tablet in it to get a more “accurate” result.  I also was taking maybe one or two injections a day.  When glucose meters eventually were available to patients, I needed a letter from my pediatric endocrinologist to make it sound like I would die if I didn’t have one, to get just one.  And who knows, that could have been true!  I don’t recall testing my blood glucose often, if at all, at school growing up.  I don’t think I took injections at school either.  (Lord knows that is probably why my a1c’s were always high!)  Now I don’t go anywhere without a meter and test no matter where it is that I am.  I have an electronic insulin pump that delivers insulin to me continuously and with the touch of a few buttons.  I even use a continuous glucose monitor that provides glucose readings from a sensor that reads interstitial fluid.  Living with diabetes is still a daily struggle and always will be.  But the resources to manage it that are available now compared to what they were 28 years ago, are astounding.  And I hope that I live long enough to see the much more advanced resources that are yet to come.  I am very thankful to be able to “celebrate” this anniversary as I’ve done pretty darn well all these years.  And now I know that I have a special D angel watching over me …. thank you Daddy.          

 Happy 28th d-versary to me! (well a day early) 

 And happy holidays to everyone!  Best wishes for a healthy and happy 2010 for all of you :)

10 comments to Christmas 28 years ago

  • k2

    HAPPY DIAVERSARY!! Celebrate the wonderfulness of you and have a CRUMBS Cupcake or 2! You certainly deserve them!

  • Tina

    Stacey, that story always makes me cry. I imagine your Dad must have been terrified having lived with it himself. That being said, maybe you are better off than some because your Dad knew how serious it was but also how doable. I bet he is so proud when he looks down on you. You are my inspiration. You have lived with it far longer than me and you braved childhood with it. Still, here you are today living life to it’s fullest. Happy Dyaversary Girl!! You missed red velvet cupcakes last night! Guess I’ll have to make some special for your anniversary ;)

  • Laurie Nunziato

    I of course remember that day like it was yesterday too. And I hate that I have to wish you this, but happy Diaversary! You amaze me every day and I pray that you will get to see many more advances for Diabetes. You deserve it! I love you!

  • Katie

    Wow what a powerful story, makes me cry when I read it too. I am in so much awe of you pwds who roughed it in those low tech d-days. Happy diaversary Stacey! Congrats on doing an amazing job w your diabetes AND helping so many others!

  • Venus

    Thank you for this story Stacey. As Katie said its exremely powerful and I am remembering when I was diagnosed too.
    Happy anniversary

  • Happy d-versary! Thanks for sharing your story and have a wonderful holiday! ((D-hugs))

  • Tricia

    I know you’ve told me the story, but reading it was very profound to me. What is it with holidays and the diagnosis of the big D?:) We share a few things in common that way :) I wish you a “Happy Diaversary!” Its one of those days we reflect on in many different ways. We should definitely get together soon and celebrate:) Merry Christmas!

  • Katie from SF, CA

    Happy 28th d-versary. (Today’s the day, right?!?) Keep up the good work, it’s a challenge, but you make the most of it. :) xoxoxo

  • Wow. Every diagnosis story is so touching in it’s own way – but yours really strikes a chord. Thanks for sharing it with us!

  • Nan

    my little C’s diaversary is 12-29!…bittersweet time around the holidays…but so worth celebrating life when this date comes round! i (like many other D moms) look to those like yourself who are living wonderful lives despite D! keep up the good fight Stacey!!

Leave a Reply

 

 

 

You can use these HTML tags

<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>