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I PUMPED!

Today’s guest blogger, Lesley Hoffman, is a member of ACT1’s support groups and has been coping with Diabetes for 15 years.  She is the Principal of an afternoon Hebrew School, loves being around fellow Diabetics and hates almost all sugar-free foods. Read her previous post “To Pump or Not to Pump” here.

It has happened a few times since I switched from taking Insulin shots to being back on an Insulin pump. I wake up in the middle of the night to go to the bathroom and something feels off. I make sure the front door is locked and it is. I check my cell phone and I  don’t have a hundred missed calls from my mom (which may or may not indicate an emergency; sometimes she does this just to say hi.) And then i realize my reason for the panic – I forgot to take my Lantus insulin. I check my blood expecting a level over 400 or a screen that just says “Hi” because the level is too high to register. Instead, it says 120 or 150 and I remember suddenly that i went back on the pump. No more Lantus needed, I only need short acting Insulin.

I guess this has been part of the larger transition back to the pump. There are things i can get used to – normal blood sugars in the morning which I haven’t had in two years, flexibility to set a temporary basal rate when I work out so I don’t go low and hopefully a lower A1C (that is yet to be determined.) But there are certain things that still infuriate and upset me. I DREAD “changing my site” – a phrase i started using in high school that doesn’t make so much sense but that i still use. I hate having to find a place for the pump when i get dressed. And i hate the red and raw spots on my stomach, hip and butt that never seem to go away, that are painful and that create scar tissue. I also hate having to explain that my pump doesn’t make my Diabetes “better,” or less annoying, it just makes it different.

In the past two years while on shots instead of the pump, visits to my endocrinologist have been hell. I get nervous the night before, I get anxious on the subway and I leave the office swearing I’m going to be better and get my levels under control. My A1C has been higher than I like for it to be and I immediately brainstorm ways to change. As I’m going through this thought process, I’m usually in the waiting room at my doctor’s office observing other Diabetic families and how they interact. What always catches me and oddly inspires me is when I see a diabetic using a walker or a cane. To me it means their levels are out of control, they have lost feeling in their legs or feet and they are suffering the sometimes inevitable side effects of diabetes. This may not be true but that is the story that is in my head. It is always then that I swear that won’t be me. I swear I’ll change and be better.

I guess this last visit was enough to push me to switch back to the pump. Even given the negatives, I am very happy with the switch. My blood sugars are already better and I physically feel better. Is it a perfect solution? Definitely not – a perfect solution would be a cure to diabetes and leading a life as a “normal” young woman in her late 20′s dealing with regular issues and everyday problems like most people I know do. But that’s not going to be me, at least not for many years.

9 comments to I PUMPED!

  • Katie

    Wow that lantus story definitely gives points to the pump category for my decision here… But I'm so excited for you that you made the difficult decision and are seeing good results – esp with those awful morning highs!

  • baby janda

    y our posts are great!! i am so happy for you that you made this decision for yourself. you seem to be feeling so much better — and i know you will be an inspiration to many :)

  • baby janda

    y our = your

  • Stacey

    So glad you made the switch and more importantly are seeing a difference already! And thank you for blogging with us again :)

  • Molly Hoffman

    I"m crying :) In a good way. That was beautiful, and that was my sister. I love you CHELS!

  • Katie in SF, CA

    Congrats on the switch. People always say to me, "oh, didn't the pump FIX your diabetes?", and I tell them that it's not a magic tool – it's only an insulin delivery tool like a syringe – just a really smart one. Keep us posted on your progress! And congrats on the 120-150 in the middle of the night. Those are great "sleeping" numbers (at least for me!). :D

  • ***

    Great blog, Hoffa!

  • Tina

    Lesley I am so happy you are blogging with us again. I am even happier the switch is turning out to be a good decision so far. People always ask if I feel lucky with the advances in diabetes care. Honestly none of it is enough until we get to a cure.

  • Phyllis Hoffman

    Loved reading your blog except of course the comment about your mother calling you 100 times. You are so lucky to have such a a caring and loving mother. I am quite sure that she calls you as much as she does because she loves you so very much and worries about you every minute of every day. Love, Mommy

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